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Tin Wall

Shores Fore

for ddx3x presents 
The 2024

golf outing

FUNDRAISER
for the
DDx3X Foundation

 

Mission Statement

our mission

every dollar raised goes to the ddx3x foundation

Shores Fore is an organization raising awareness and funds to support the DDX3X Foundation through our love for the game of golf. Our efforts are inspired by DDX3X Warrior, ten-year-old Hadley Rader.

DDX3X is a rare disease that is caused by a spontaneous mutation at conception on the DDX3X gene. It primarily affects girls due to its location on the X-chromosome and was only recently discovered in 2014. DDX3X patients are often misdiagnosed as an autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy-Walker Syndrome, or a generic developmentally delayed label. DDX3X has a broad spectrum- some children learn to speak in full sentences while others are nonverbal; some individuals run, jump and even ski while others are unable to walk.

The average span of getting a correct diagnosis for a rare disease is 7 years! We would like to shorten that span by raising awareness of DDX3X and donating every dollar raised to the DDX3X Foundation.

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Golf Outing Info
Black Metal

event details

June 29,2024 

Shagbark golf & country club

1262 N 640 East Rd. Onarga, IL 60955

check-in BEGINS AT 12

SHOTGUN START AT 1PM CONTESTS, RAFFLES, + PRIZES

REGISTRATION FOR GOLF OR DINNER (until full)

  • Golfer Registration: $340 (Team of 4) or $85 per golfer
    Includes a great day of golf (18 holes with cart), Shores Fore Cup&Tees, Dinner

  • Dinner Registration: $25 per person 

 

SPONSORSHIPS (due by May 29,2024)

  • Master Sponsor - $750   Includes One Foursome Golf Team-18 holes with 2 carts, Dinner for 4, 4 Shores Fore T-Shirts, Hole Sponsor, Table Sponsor, 4 Shores Fore Cups with Tees & Facebook post advertising your business as a sponsor

  • Champion Sponsor - $500  Includes Dinner for 4, 4 Shores Fore T-Shirts, Hole Sponsor, Table Sponsor & Facebook post advertising your business as a sponsor                 

  • Hole Sponsor - $50   Includes a sign at a tee box with your name or company logo

  • Table Sponsor - $30  Includes a sign at a dinner table with your name or company logo

  • Raffle Donation - Donate an item for our raffle, receive recognition on raffle table and Facebook shoutout

CLICK BELOW TO SIGN UP FOR THE OUTING OR SPONSORSHIP!

Sign Up

Our inspiration behind shores fore for ddx3x

This is Hadley, our inspiration for raising awareness and funds for the DDX3X Foundation. Hadley was diagnosed with DDX3X Syndrome in 2017 after a long three years of searching for answers for some challenges she was having such as inability to nurse, failure to thrive, and not meeting milestones. At the time of her diagnosis, there were only around 200 individuals diagnosed with DDX3X worldwide! DDX3X Syndrome can affect individuals differently, but for Hadley, it impacts nearly every aspect of her life. She has global developmental delays in all areas, yet works so hard to improve herself daily! Hadley has been in several therapies since she was 18 months old. We love our Hadley and her loving, enthusiastic outlook on life.


The DDX3X Foundation was the first place we turned to when we received Hadley’s diagnosis. The foundation was started by two moms whose daughters were among the first-ever diagnosed with DDX3X. The overarching goal of the foundation is to raise money to fund research working towards treatments or cures for DDX3X. (fun fact: A LOT of research conducted on rare diseases relies on funding from patient groups) The foundation has become home to us through the connections we've made, research Hadley has been able to participate in, and knowledge we’ve gained. If you want to learn more about the foundation please visit DDX3X Foundation.

 

Thank you to all of our friends and family who have selflessly supported Hadley and the Foundation in the hopes of finding a treatment!

Inspiration
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Sponsors

THANK YOU TO OUR SPONSORS

Questions or comments? Email at shoresfore@gmail.com or call/text (815)-228-2864

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